Up before the birds and most sane people! Alisa had time with Daddy before he left for work. Our Chicago bound chariot arrived promptly at 5:30am. We enjoyed the ride till Schaumburg came into view...and then the going was slow!!! We rolled along watching the minutes tick by...34 min to the circle...19 min to the circle...
and then we took an alternate route accidentally. "Wait! We're ok! I'm dialing in the GPS and she will tell us where to go! I recognize this....Lakeshore Drive goes by the museum which is by the hospital...we'll be fine! Yep, see...she is telling us...oh, that's Ted calling..." Mom, MOM, I feel like I am going to puke..."Oh...no...not now, Alisa, we are almost there...just settle...oh, that's Grandma...we turn right her...oh Alisa....I didn't bring...I'm sorry...oh...we're here."
We checked in at 7:56am...and then the changes started kicking in that made the day not go like we expected. "You need to go across to the DCAM building for the MRI. They are waiting for you over there." Uh, ok...but...hmmmm? It is the adult side of the medical testing...they tried to be kid friendly...but...no headphones, no music, no movie, no child-life...
"Alisa, we can do this. It will be ok. Kim will take good care of you."
Alisa's MRI started and we took care of the business side and got a Pumpkin Chai Latte and found a bench. The tech came and got me...27 min. Wow! They are done? Uh...NO! It was time for the contrast and Alisa wasn't doing so good. REALLY?! I TOLD YOU THAT! I held her hand and she did fine...needle in her arm quick and add the...blown vein. 2nd tech came in...used smaller needle in her hand fast and...collapsed vein. Take a little break and wait for a nurse to come. 3rd time in other hand...in fast and easy amid lots of tears and add the contrast...blown vein. YOU HAVE GOT TO BE KIDDING ME! YOU HAVE ONE MORE CHANCE AND WE ARE DONE. 4th time as we are talking...into arm and doing great...blown vein.
Alisa was sobbing. I was cracking...nurses "were very sorry". I have a question..."Do you think dehydration could be a problem here? Nothing to eat or drink since last night. She threw up on the way...4 times is too much...we are done. I told you...and I don't even know why we are over here when they know she has trouble with this..." Tears...I couldn't help it. "Next time...you tell them you want Comer's. You have that right." HELLO! That is where I scheduled us...I don't even know why we are over here. "I'm a Mom too and I know it hurts to see your child in pain, but I want you to see the whole picture. We need to get the contrast in so we get a clear picture and good results for you." BUT HOW FAR DO YOU PUSH IN A SITUATION LIKE THIS...IT IS TOO MUCH FOR HER...THIS HAS ALWAYS BEEN A HUGE DEAL FOR HER...AND NOW THIS...DO YOU KNOW WHAT NEXT TIME WILL BE LIKE BECAUSE OF WHAT YOU HAVE ALLOWED THIS TIME...
"We will take an hour break for her to hydrate and eat a little something. I don't want to talk you into anything as it is still your choice, but I'd like you to consider it."
WE'LL TAKE A BREAK AND HYDRATE AND YOU HAVE ONE CHANCE. YOU CALL SOMEONE TO HELP HER!
"We'll call Bern from Comer's."
Apple juice over ice and Lorna Doone cookies...on "our bench" with our sweet friend who gives great back scratches and shares tears when we have them too!
We walked around outside. We sat and watched people.
We called Daddy. We texted Grampy. We drank...water...and were glad that we come here in the spring and fall...missing all the winter weather in such a crazy, busy place.
Alisa's spirits brightened and then we went back to finish the MRI. We were met by a child-life friend, Aimee, and our new nurse friend, Bern. What a difference being hydrated made! Bern and Aimee had that iv in and taped in under 30 seconds. The MRI schedule was so busy on the children's side yesterday, we
got bumped over...but not next time..."You insist...and then you have them page Bern!"
Within 45 minutes, the MRI was completed and we made our way to Dr. Frim's office...1:03pm...a far cry from our 11:40am appointment!
Our girl with her battle marks and our personal "bag lady"! We were hungry by this time...no breakfast and no lunch...headaches all around.
"This is how today has made me feel!" I muttered as I sat playing with my necklace...trying to get it untwisted.
We did our best to amuse ourselves. Our cheery friend was hesitant to demonstrate the use of the blood pressure cuff...drat...maybe next time!
Headaches in full force...stomaches growling...laughter loud...minutes passing...
we opened the door to remind everyone we were still here! Finally, at 2:45 pm...answers!
NO CHANGES IN THE SCAN SINCE APRIL!
We will scan again in six months. We want to make sure some of the moaning we hear at night is not pain related...that nothing is changing even in small ways. Movement, reflexes, balance are all good.
We spent a whole day in Chicago...at the hospital...with countless people asking us, "What are you going to do for fun after this appointment?" UM...we are going to get something to eat. After 7 hours in the Windy City for our special girl...we pulled out all the stops...and went to the first place we could get to fast...the hospital cafeteria!
We collectively sighed and enjoyed lunch!
And...we were just ready to head home. Alisa was whipped. And our chariot driver and I realized...it was rush hour...again!
God was and is still good...even when this day was completely different from what we had expected or imagined! Alisa isn't sick. It was only one test. And as I watched other parents and patients today, I was reminded of what God has done for us in His mercy, love, and grace. Our day was a little crazy...but we are so blessed.
We took scenic routes into the city. We took a scenic route back to I-90 and found out on news radio that our usual route held a bad accident. This truck made us laugh as we sat in the middle of rush hour going 4 mph! Our cheery friend calculated that it would take us 34 hours to get home at that rate...and we laughed.
We enjoyed a climate-controlled vehicle, beautiful music, sweet company, and many sights!
Alisa was just glad to have the pokes out of the way!
It took us 1 hour and 45 minutes to go 37 miles.
And we just kept laughing and talking...
and soon we were headed out of the big city.
We stopped to enjoy a special treat from a special friend. I think we earned it!
Alisa took a big drink and exclaimed, "This is the perfect way to celebrate our never-ending trip!"
We are thankful for prayer. We are thankful for friends.
We are thankful for another good scan.
We are thankful six months are in His hands...just like today was in His hands!